Run For Your Son

A project to raise money for the cure of Cystic Fibrosis

 

Why 'Run for your Son' and why donate?

Ole Arens (born on 16 July 2009) has Cystic Fibrosis, a genetic and incurable disease with a limited life expectancy (37 yrs average). Ole´s parents (Arne & Katharina) decided to run the New York marathon in 2011 together with Ole (don´t worry, he´s just sitting in his stroller.....) and a team of +-35 other people to contribute to the search for a cure. This project, called ´Run for your Son´, has as its goal for this year to raise € 100.000 for the CF foundation around the marathon. Make your donation today on this website and receive the beautiful song ´65 Roses´ by Dutch band ´Acda & De Munnik´ to download (in English). This song is exclusive to Run for your Son and not available anywhere else!

More info on Cystic Fibrosis

In essence, CF patients genetically lack a certain protein that ´resolves´ mucus in the body (primarily lungs, intestines and pancreas). Thus, mucus sticks in their body and forms a perfect breeding ground for bacteria. Especially the lungs are vulnerable to infections and pneumonia, which breaks down the lung capacity slowly but surely. CF is currently incurable and has an average life span of 37 years. CF comes in many forms and for Ole it means a strict medical regimen each day (antibiotics, inhalation, nutritional supplements and careful hygiene). And although medical science has made tremendous progress over the last 20 years, there is still no cure.

The money raised by the team will be used by the Dutch CF foundation to contribute towards financing 10 coordinators that manage research projects in Dutch hospitals.

 

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